Information in English
The Swedish Cancer Society is an independent non-profit organization with the vision of finding cures for cancer. The overall aim of the Society is to achieve a higher survival rate and a reduction in the incidence of cancer.
Our main task is to raise and distribute money for cancer research. As one of the largest financiers of cancer research in Sweden, the Swedish Cancer Society essentially acts as a national research council.
Thanks to the organization’s extensive knowledge about cancer, the Swedish Cancer Society is also active in areas such as public opinion and spreading knowledge about cancer, as well as results of cancer research.
The Swedish Cancer Society was founded in 1951 by the gentlemen’s outfitter Morri Nidén and housewife Ebba Andersson. They had one thing in common – both had had cancer and survived.
During their illness, they met some cancer researchers and discovered that many more patients would survive if more research was conducted. The solution was an organisation that could channel funds to the researchers. And that´s why they founded the Swedish Cancer Society, or rather “The National Society for the Fighting of Cancer Diseases”, as it was called at the time.
The drive and commitment of Ebba and Morris has been an inspiration to the Swedish Cancer Society’s operations ever since.
The Swedish Cancer Society’s core activity is financing research. In 2017 the Research Commission award 499 million Swedish kronor to Swedish research projects, care development projects in cancer research positions, grants and other areas. Additional areas of support include participation in courses and conferences related to cancer, as well as scientific meetings and collaboration groups.
The crucial aspects to consider when awarding grants are each project’s originality, anticipated news value and feasibility, and its link to cancer. The process of selecting the very best research projects follows established procedures and is closely regulated. In May each year researchers submit applications describing the aims and expected results of their projects, along with a cost calculation. Applications are nine forwarded to eight different prioritization committees for evaluation. The various committees’ proposals are assessed in October, and in November the Research Commission makes a decision regarding which projects will be funded. The committees and the Commission jointly include some 60 experts in various cancer-related areas.
Regulations stipulate that the Research Commission should follow the same principles as government research councils – such as the national Swedish Research Council – when awarding grants. The Research Commission’s aim is to support the projects that represent the highest quality in the field of cancer, whatever the focus. This means that the selection takes place in national competition and does not take into account the field of research or the geographic location. However, there are some exceptions where targeted funds are awarded to research areas of particular urgency.
Opinion-leading and the spreading of knowledge
As one of Sweden’s largest organizations in the field of cancer, it is vital to actively participate in the general debate about the disease. In 2001 the Swedish Cancer Society started promoting the idea of a collective strategy for fighting cancer in Sweden – expressed by the need for a National Cancer Plan.
The aim of the annual Swedish Cancer Society Report is to strengthen opinion-leading efforts, and to contribute with the Society’s knowledge and experience in order to highlight problems in the area of cancer. In 2017 the report is published for the 12th time. We are happy to verify that The National Board of Health and Welfare (Socialstyrelsen) has now started to implement the plan.
Another task that lies within the frame of the Swedish Cancer Society’s opinion-leading efforts is cancer prevention. Efforts in this area are focused on the dangers associated with use of tobacco and excessive exposure to the sun.
As a non-profit organization, the Swedish Cancer Society receives no government funding, and is therefore entirely dependent on private donations. In 2016 the Society raised 688 million Swedish kronor. The main bulk of donations comes from private individuals and companies although legacies represent a significant proportion.The donors can choose between a dozen different ways to support the Swedish Cancer Society. Fundraising activities are constantly developing in order to improve effectiveness.
The best known and most widely spread fundraising activity is the Pink Ribbon campaign for breast cancer. Companies, organizations and private individuals all over Sweden take part in all kinds of different fundraising activities in the campaign month, which is October. The aim of the campaign is to finance research, increase awareness of breast cancer and arouse public opinion within the breast cancer area.
The Swedish Cancer Society also aims to increase knowledge about the non-profit sector in general. Non-profit organizations operate under different conditions to public services and the private sector, and for as long as knowledge of their situation remains poor, non-profit bodies are obliged to adapt to the rules of play of other sectors.
Member of the Swedish Fundraising Council
Along with 125 other fundraising organizations, the Swedish Cancer Society is a member of the Swedish Fundraising Council. The mission of the Swedish Fundraising Council is to promote ethical and professional fundraising and improve the conditions for fundraising through political lobbying and negotiating with commercial suppliers. Ethical questions related to fundraising are very important and the Swedish Fundraising Council has worked out standards and a code of conduct for its members. Since 2003, The Swedish Cancer Society has been certified in accordance with ISO 9001:2000, an international quality code and is inspected in accordance with this international standard each year.
Att ärva risk för cancer
De flesta vill veta om de löper hög risk att drabbas av ärftlig cancer, för att ha möjlighet att förebygga med kontroller eller operation. Men om risken bara är marginell eller om cancerformen är svår att förebygga: Är det då lika självklart att vi vill veta?
”Människor mår bra av att veta”
Beskedet om att man har hög risk för ärftlig cancer är ett hårt slag. Men för de flesta lägger sig oron inom sex månader.